Frumpfighter

Grandparents role models in understanding autism

Posted on: April 1, 2009

Gazette Communication’s Information Content Conductor Steve Buttry (in short, my boss) posed a question at the end of his March 23 column regarding the Linn Area Reads program.  This year’s program features “Tallgrass” by Sandra Dallas and Harper Lee’s classic novel, “To Kill a Mockingbird,” which delves into the delicate issue of racism in America. Steve asked readers what issues a modern-day Harper Lee should address today.

Longtime Cedar Rapids resident and Gazette reader Ray Buck e-mailed Steve of a possible Harper Lee in our midst today.

Rules by Cynthia Lord

Rules by Cynthia Lord

Ray wrote: “Cynthia Lord and she has written a lovely children’s book, Rules. It is a novel that looks at feeling different yet finding acceptance in today’s crazy, demanding world. You mentioned both of your books were told through the eyes of a young girl. Rules is a story told by a 12 year old girl with an autistic younger brother. About a snooty new neighbor and a young man, ‘handicapped’ with no voice.”

Steve forwarded me Ray’s e-mail because I often write about my son, Sage, who is on the autism spectrum and has ADHD as well. Ray is the grandfather of an autistic child, Jack.

What struck me most about Ray was his willingness to learn about the disorder that affects approximately 1 in 150 children. Autism is a difficult disorder to understand and, sometimes, to accept. It affects an individual’s ability to socialize, make transitions and in extreme cases, function. There are outbursts, tantrums, obsessions, inappropriate comments, incessant talking, and, sometimes, no talking at all.

It is instinctive to think these children are “bad” and their parents are not disciplining them enough. It can be especially difficult for grandparents and others  in Ray’s generation (he’s 68)  to understand these children. But Ray and his wife, Karren, are making every effort to understand their grandson.

When the Bucks’ grandson was diagnosed with autism, their son Brad and his wife Traci involved them with the process.

Ray wrote me in an e-mail: “I don’t recall we had a difficult time understanding or accepting his diagnosis because his parents included us in everything, right from the start. What they were feeling, what they were doing to help Jack.”

autism-ribbon2April is Autism Awareness Month and I hope more and more people take on Ray and Karren’s attitude of understanding and acceptance.

The Bucks were kind enough to drop off a copy of “Rules” for me at the office. I finished reading it last night and agree that it teaches a valuable lesson and should be read  by many, especially young students.

“Rules” focuses on a 12-year-old girl, Catherine, who is torn between taking care of her younger autistic brother and making friends with the new hip girl next door. To make things more complicated, she develops a friendship with a non-verbal boy in a wheelchair while going to her brother’s occupational therapy appointments.

At that age, there is a need to impress peers , and having your “different” brother tagging along and acknowledging your handicapped friend to the “cool kids” just doesn’t fit the mold.

I won’t tell you the ending, but I think you’ll be pleased with Catherine’s maturity.

I have set up an Autism Awareness Month page on the Frumpfighter blog. I invite anyone affected by autism to share their story. Please e-mail me at angie.holmes@gazcomm.com or ajh1109@mchsi.com

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